{"id":228,"date":"2025-03-31T10:48:05","date_gmt":"2025-03-31T10:48:05","guid":{"rendered":"https:\/\/spina-bifida.cz\/?p=228"},"modified":"2025-04-03T12:34:15","modified_gmt":"2025-04-03T12:34:15","slug":"podpurna-skupina-pro-rodice-deti-s-rozstepem","status":"publish","type":"post","link":"https:\/\/spina-bifida.cz\/index.php\/2025\/03\/31\/podpurna-skupina-pro-rodice-deti-s-rozstepem\/","title":{"rendered":"Podp\u016frn\u00e1 skupina pro rodi\u010de"},"content":{"rendered":"\n<p>\u010ce\u0161t\u00ed pacienti se spinou bifidou i ti, kte\u0159\u00ed o n\u011b pe\u010duj\u00ed, maj\u00ed z\u00e1zem\u00ed na soci\u00e1ln\u00ed s\u00edti facebook ve skupin\u011b <a href=\"https:\/\/www.facebook.com\/groups\/1742810919181892\" target=\"_blank\" rel=\"noreferrer noopener\">Spina bifida a hydrocephalus <span style=\"text-decoration: underline;\">\u2665\ufe0f<\/span><\/a>. Nab\u00edz\u00ed rady ohledn\u011b rehabilitac\u00ed, l\u00e9ka\u0159sk\u00fdch z\u00e1krok\u016f a vz\u00e1jemnou podporu. \u010casto se na t\u011bchto s\u00edt\u00edch objevuj\u00ed fotky a p\u0159\u00edb\u011bhy d\u011bt\u00ed, kter\u00e9 se skrze dostupn\u00e9 terapie postupn\u011b rozchodily a i kdy\u017e je to b\u011bh na dlouhou tra\u0165 a p\u0159es p\u0159ek\u00e1\u017eky, b\u00fdv\u00e1 i toto mo\u017en\u00e9.<\/p>\n\n\n\n<p>Krom\u011b toho m\u016f\u017eete na facebooku naj\u00edt i podp\u016frn\u00e9 skupiny pro jednotliv\u00e9 d\u00edl\u010d\u00ed diagn\u00f3zy, kter\u00e9 b\u00fdvaj\u00ed s roz\u0161t\u011bpem p\u00e1te\u0159e spojeny. Mezi nimi nap\u0159\u00edklad:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><a href=\"https:\/\/www.facebook.com\/groups\/519814064823540\" target=\"_blank\" rel=\"noreferrer noopener\">Pes Equinovarus (Czech Republic) &#8211; Achilleus z.s.<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/www.facebook.com\/groups\/585049571550253\/\" target=\"_blank\" rel=\"noreferrer noopener\">Jak se \u017eije s HYDROCEPHALEM<\/a><\/li>\n<\/ul>\n\n\n\n<h2 class=\"wp-block-heading\">Podpora na Slovensku<\/h2>\n\n\n\n<p>Slovensk\u00e9 maminky rozjely na soci\u00e1ln\u00ed s\u00edti facebook <a href=\"https:\/\/www.facebook.com\/groups\/311693532932243\">podp\u016frnou skupinu pro rodi\u010de d\u011bt\u00ed, kter\u00e9 maj\u00ed roz\u0161t\u011bp p\u00e1te\u0159e nebo hydrocefalus<\/a>. Skupina je op\u011bt velmi prakticky zalo\u017eena. Obsahuje rady ohledn\u011b dostupn\u00fdch rehabilitac\u00ed, l\u00e9ka\u0159sk\u00fdch v\u00fdsledc\u00edch a p\u0159\u00edsp\u011bvc\u00edch na Slovensku. N\u011bkter\u00e9 p\u0159\u00edsp\u011bvky op\u011bt mohou p\u0159es\u00e1hnout a\u017e za hranice do \u010cesk\u00e9 republiky.<\/p>\n\n\n\n<p>Dal\u0161\u00ed skupinou pro povzbuzen\u00ed a zv\u00fd\u0161en\u00ed informovanosti je skupina <a href=\"https:\/\/www.facebook.com\/profile.php?id=100063694081273\">Spina Bifida Superheroes<\/a>. Obsahuje dal\u0161\u00ed p\u0159\u00edb\u011bhy d\u011bt\u00ed s roz\u0161t\u011bpem, cesty jejich rodin a p\u0159\u00edle\u017eitosti, jak je podpo\u0159it. Skupinu najdete <a href=\"https:\/\/www.facebook.com\/profile.php?id=100063694081273\" target=\"_blank\" rel=\"noreferrer noopener\">zde<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u010ce\u0161t\u00ed pacienti se spinou bifidou i ti, kte\u0159\u00ed o n\u011b pe\u010duj\u00ed, maj\u00ed z\u00e1zem\u00ed na soci\u00e1ln\u00ed s\u00edti facebook ve skupin\u011b Spina bifida a hydrocephalus \u2665\ufe0f. Nab\u00edz\u00ed rady ohledn\u011b rehabilitac\u00ed, l\u00e9ka\u0159sk\u00fdch z\u00e1krok\u016f a vz\u00e1jemnou podporu. \u010casto se na t\u011bchto s\u00edt\u00edch objevuj\u00ed fotky a p\u0159\u00edb\u011bhy d\u011bt\u00ed, kter\u00e9 se skrze dostupn\u00e9 terapie postupn\u011b rozchodily a i kdy\u017e je to [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":279,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-228","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-podpora"],"_links":{"self":[{"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/posts\/228","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/comments?post=228"}],"version-history":[{"count":7,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/posts\/228\/revisions"}],"predecessor-version":[{"id":321,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/posts\/228\/revisions\/321"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/media\/279"}],"wp:attachment":[{"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/media?parent=228"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/categories?post=228"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/tags?post=228"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}