{"id":222,"date":"2025-03-31T10:25:25","date_gmt":"2025-03-31T10:25:25","guid":{"rendered":"https:\/\/spina-bifida.cz\/?p=222"},"modified":"2025-04-03T12:34:24","modified_gmt":"2025-04-03T12:34:24","slug":"podpurna-skupina-pro-tehotne","status":"publish","type":"post","link":"https:\/\/spina-bifida.cz\/index.php\/2025\/03\/31\/podpurna-skupina-pro-tehotne\/","title":{"rendered":"Podp\u016frn\u00e1 skupina pro t\u011bhotn\u00e9"},"content":{"rendered":"\n<p>V roce 2020 vznikla na soci\u00e1ln\u00ed s\u00edti Facebook <a href=\"https:\/\/www.facebook.com\/groups\/187897352286608\">podp\u016frn\u00e1 skupina<\/a> pro t\u011bhotn\u00e9 maminky, kter\u00e9 \u010dekaj\u00ed d\u011b\u0165\u00e1tko s podez\u0159en\u00edm na v\u00fdvojovou vadu roz\u0161t\u011bpu p\u00e1te\u0159e. Jedn\u00e1 se o ve\u0159ejnou otev\u0159enou skupinu plnou cenn\u00fdch rad, povzbuzen\u00ed, p\u0159\u00edb\u011bh\u016f pacientek, kter\u00e9 podstoupily fet\u00e1ln\u00ed operaci, a fotek kr\u00e1sn\u00fdch, \u0161\u0165astn\u00fdch d\u011bt\u00ed.<\/p>\n\n\n\n<p>Skupina se prezentuje t\u00edmto kr\u00e1sn\u00fdm textem. Mo\u017en\u00e1, \u017ee se v n\u011bm odraz\u00ed i Va\u0161e osobn\u00ed zku\u0161enost:<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p class=\"has-medium-font-size\">T\u00e1to skupina je najm\u00e4&nbsp;pre maminky, ktor\u00fdch deti\u010dk\u00e1m diagnostikovali alebo maj\u00fa z krvn\u00fdch testov (vysok\u00fd alfafytoprote\u00edn) podozrenie na r\u00e1z\u0161tep chrbtice (spina bifida) a s t\u00fdm spojen\u00fd aj mo\u017en\u00fd hydrocefalus.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">Ke\u010f\u017ee internetom sa \u0161\u00edri mno\u017estvo dezinform\u00e1ci\u00ed o tejto diagn\u00f3ze, ke\u010f\u017ee empatia zo strany lek\u00e1rov (na p\u00e1r v\u00fdnimiek) je naozaj n\u00edzka, ke\u010f\u017ee maminky sa stretn\u00fa okam\u017eite s n\u00e1vrhmi na potrat ich die\u0165atka a kadejak\u00fdmi hororov\u00fdmi pr\u00edbehmi a verziami toho, ak\u00e9 bude die\u0165a &#8211; nazvime to &#8220;mon\u0161trum&#8221; a &#8220;le\u017eiak a debil&#8221; a podobn\u00e9 v\u00fdrazy, ktor\u00fdmi v\u00e1s ne\u0161etria lek\u00e1ri, ani okolie, t\u00e1to skupina je na <strong>pomoc a podporu maminiek, ktor\u00e9 prech\u00e1dzaj\u00fa siln\u00fdm psychick\u00fdm vyp\u00e4t\u00edm a strachom z toho, \u010do ich \u010dak\u00e1<\/strong>.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">Sme tu maminy tak\u00fdchto deti\u010diek, ktor\u00e9 s\u00fa \u00faplne fantastick\u00e9, \u00fa\u017easn\u00e9, kr\u00e1sne a \u0161ikovn\u00e9. M\u00f4\u017eete sa obr\u00e1ti\u0165 s akouko\u013evek ot\u00e1zkou a my sa budeme sna\u017ei\u0165 &#8211; na z\u00e1klade na\u0161ich doteraj\u0161\u00edch sk\u00fasenost\u00ed a kontaktov &#8211; nasmerova\u0165 v\u00e1s bu\u010f k odborn\u00edkovi, ktor\u00fd V\u00e1m naozaj porad\u00ed \u010do v\u00e1s \u010dak\u00e1, ak\u00e9 su mo\u017enosti oper\u00e1cie e\u0161te v bru\u0161ku a kam \u00eds\u0165 na tak\u00fato oper\u00e1ciu. Pri vn\u00fatromaternicovej oper\u00e1cii sa toti\u017e progn\u00f3zy a celkov\u00fd stav hybnosti die\u0165atka v\u00fdrazne zlep\u0161\u00ed. Nem\u00e1 potom a\u017e tak\u00e9 n\u00e1sledky.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">Takisto v\u00e1m porad\u00edme na ak\u00fdch lek\u00e1rov sa obr\u00e1ti\u0165, za k\u00fdm \u00eds\u0165 na konzult\u00e1cie, ak\u00e9 ortopedick\u00e9\/urologick\u00e9\/neurologick\u00e9 vy\u0161etrenia\/rie\u0161enia s\u00fa mo\u017en\u00e9.<\/p>\n\n\n\n<p class=\"has-medium-font-size\">K zalo\u017eeniu tejto skupiny n\u00e1s podnietili neust\u00e1le zbyto\u010dn\u00e9 a nezmyseln\u00e9 indikovan\u00e9 potraty zo strany lek\u00e1rov. <strong>Tieto deti\u010dky si zasl\u00fa\u017eia \u0161ancu na \u017eivot, nie je to \u017eiadne smrte\u013en\u00e9 ochorenie, s ktor\u00fdm by sa nedalo \u017ei\u0165.<\/strong><\/p>\n\n\n\n<p class=\"has-medium-font-size\">D\u00fafame, \u017ee pom\u00f4\u017eeme mamink\u00e1m presta\u0165 sa b\u00e1\u0165 a \u017ee im uk\u00e1\u017eeme, \u017ee tieto deti\u010dky maj\u00fa v sebe neskuto\u010dne ve\u013ea pozit\u00edvnej energie a miluj\u00fa rovnako ako tie zdrav\u00e9. \u2661\u2661\u2661<\/p>\n<\/blockquote>\n\n\n\n<p>Skupinu najdete na webov\u00e9 adrese: <a href=\"https:\/\/www.facebook.com\/groups\/187897352286608\">https:\/\/www.facebook.com\/groups\/187897352286608<\/a><\/p>\n\n\n\n<p>Skupina byla prim\u00e1rn\u011b zalo\u017eena pro slovensk\u00e9 pacientky, ale informace v n\u00ed obsa\u017een\u00e9 p\u0159esahuj\u00ed i hranice. V \u010desk\u00fdch re\u00e1li\u00edch je mo\u017en\u00e9 se m\u00edsto Ko\u0161ic a Bratislavy obr\u00e1tit na pra\u017esk\u00e9 <a href=\"?index.php#podoli\">Centrum fet\u00e1ln\u00ed medic\u00edny v \u00dastavu p\u00e9\u010de pro matku a d\u00edt\u011b Podol\u00ed<\/a>.<\/p>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>V roce 2020 vznikla na soci\u00e1ln\u00ed s\u00edti Facebook podp\u016frn\u00e1 skupina pro t\u011bhotn\u00e9 maminky, kter\u00e9 \u010dekaj\u00ed d\u011b\u0165\u00e1tko s podez\u0159en\u00edm na v\u00fdvojovou vadu roz\u0161t\u011bpu p\u00e1te\u0159e. Jedn\u00e1 se o ve\u0159ejnou otev\u0159enou skupinu plnou cenn\u00fdch rad, povzbuzen\u00ed, p\u0159\u00edb\u011bh\u016f pacientek, kter\u00e9 podstoupily fet\u00e1ln\u00ed operaci, a fotek kr\u00e1sn\u00fdch, \u0161\u0165astn\u00fdch d\u011bt\u00ed. Skupina se prezentuje t\u00edmto kr\u00e1sn\u00fdm textem. Mo\u017en\u00e1, \u017ee se v n\u011bm [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":278,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-222","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-podpora"],"_links":{"self":[{"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/posts\/222","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/comments?post=222"}],"version-history":[{"count":3,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/posts\/222\/revisions"}],"predecessor-version":[{"id":230,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/posts\/222\/revisions\/230"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/media\/278"}],"wp:attachment":[{"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/media?parent=222"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/categories?post=222"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/tags?post=222"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}