{"id":18,"date":"2025-04-02T16:31:40","date_gmt":"2025-04-02T16:31:40","guid":{"rendered":"https:\/\/spinabifida.kaza.cz\/?p=18"},"modified":"2025-05-01T05:00:09","modified_gmt":"2025-05-01T05:00:09","slug":"nas-pribeh","status":"publish","type":"post","link":"https:\/\/spina-bifida.cz\/index.php\/2025\/04\/02\/nas-pribeh\/","title":{"rendered":"N\u00e1\u0161 p\u0159\u00edb\u011bh"},"content":{"rendered":"\n<p>Jmenuji se Ane\u017eka Kaz\u00edkov\u00e1 a ve 22. t\u00fddnu t\u011bhotenstv\u00ed diagnostikovali m\u00e9mu d\u011bv\u010d\u00e1tku v\u00fdvojovou vadu spina bifida aperta: otev\u0159en\u00fd roz\u0161t\u011bp p\u00e1te\u0159e a j\u00edm zp\u016fsobenou nehybnost doln\u00edch kon\u010detin, vbo\u010den\u00e9 \u0161lapky a hromad\u011bn\u00ed mozkom\u00ed\u0161n\u00edho moku v hlavi\u010dce. V diagnostick\u00e9m centru v Brn\u011b ve Veve\u0159\u00ed mi citliv\u011b vysv\u011btlili podstatu diagn\u00f3zy a jak m\u016f\u017ee \u017eivot se spinou bifidou vypadat. Nab\u00eddli mi dv\u011b v\u00fdchodiska &#8211; bu\u010fto interrupci a t\u011bhotenstv\u00ed do 25. t\u00fddne ukon\u010dit, nebo zvolit \u017eivot s fyzick\u00fdm handikepem a nechat d\u00edt\u011b operovat do 48 hodin po porodu ve Fakultn\u00ed nemocnici Brno nebo v pra\u017esk\u00e9m Podol\u00ed. Progn\u00f3za je, \u017ee hol\u010di\u010dka bude chrom\u00e1 a bude vy\u017eadovat nadstandardn\u00ed p\u00e9\u010di. Zvolili jsme \u017eivot.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Pro\u010d?<\/h3>\n\n\n\n<p>V \u017e\u00e1dn\u00e9m p\u0159\u00edpad\u011b bych si nep\u0159\u00e1la, aby moje rozhodnut\u00ed bylo v\u00fd\u010ditkou \u017een\u00e1m, kter\u00e9 se kdy rozhodly jinak. Jsme v dobr\u00e9 \u017eivotn\u00ed situaci, mohu se o d\u00edt\u011b starat na pln\u00fd \u00favazek. <em>Nakonec je d\u016fle\u017eit\u00e9 d\u011blat p\u0159edev\u0161\u00edm to, v co \u010dlov\u011bk v\u011b\u0159\u00ed.<\/em><\/p>\n\n\n\n<p>V na\u0161em p\u0159\u00edpad\u011b bylo rozhodnut\u00ed pro \u017eivot pr\u00e1v\u011b z\u00e1le\u017eitost\u00ed v\u00edry. Ze srdce v\u011b\u0159\u00edm, \u017ee P\u00e1nem \u017eivota i smrti je B\u016fh a nechci mu do t\u00e9to pr\u00e1ce zasahovat. Bude-li si cht\u00edt d\u00edt\u011b k sob\u011b zavolat, bude m\u00edt jist\u011b mnoho p\u0159\u00edle\u017eitost\u00ed i vzhledem k dal\u0161\u00edm zdravotn\u00edm komplikac\u00edm a operac\u00edm, kter\u00e9 jsou d\u011b\u0165\u00e1tku p\u0159edpov\u011bzeny. Sv\u016fj \u00fakol vn\u00edm\u00e1m opa\u010dn\u011b &#8211; chci d\u00edt\u011b chr\u00e1nit a poskytnout mu <em>\u0161anci pro co nejlep\u0161\u00ed \u017eivot<\/em>.<\/p>\n\n\n\n<p>Kdy\u017e jsem p\u0159edlo\u017eila druh\u00fd den toto stanovisko sv\u00e9mu o\u0161et\u0159uj\u00edc\u00edmu gynekologovi, doporu\u010dil mi zvolit porodnici v Podol\u00ed, nebo\u0165 \u010detl, \u017ee na tomto pracovi\u0161ti dok\u00e1zali \u00fasp\u011b\u0161n\u011b operovat miminka je\u0161t\u011b v d\u011bloze. To byl prvn\u00ed z\u00e1van nad\u011bje.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Operace je\u0161t\u011b v d\u011bloze?<\/h3>\n\n\n\n<p>N\u00e1sledoval t\u00fdden p\u0159\u00edprav na sch\u016fzku v \u00daPMD Podol\u00ed. Zjistili jsme, \u017ee roz\u0161t\u011bp p\u00e1te\u0159e skute\u010dn\u011b lze operovat je\u0161t\u011b v d\u011bloze a \u017ee tato operace nab\u00edz\u00ed pro d\u011b\u0165\u00e1tko \u0159adu v\u00fdhod. Zdravotn\u00ed stav miminka s touto v\u00fdvojovou vadou m\u00e1 tendenci se v pr\u016fb\u011bhu t\u011bhotenstv\u00ed zhor\u0161ovat: otev\u0159en\u00e1 p\u00e1te\u0159 p\u016fsob\u00ed degeneraci pohybov\u00e9 aktivity nohou, blokuje mozkom\u00ed\u0161n\u00ed kan\u00e1l d\u00edky deformaci moze\u010dku a zp\u016fsobuje zavodn\u011bn\u00ed mozkom\u00ed\u0161n\u00edch komor, tzv. hydrocephalus. V okam\u017eiku kdy se ale p\u00e1te\u0159 zav\u0159e, se dal\u0161\u00ed zhor\u0161ov\u00e1n\u00ed radik\u00e1ln\u011b zpomal\u00ed, \u010di zcela zastav\u00ed. D\u011bti operovan\u00e9 je\u0161t\u011b v t\u011bhotenstv\u00ed maj\u00ed \u010dasto v\u00fdrazn\u011b lep\u0161\u00ed pohybov\u00e9 schopnosti a v\u00fdsledky ne\u017eli d\u011bti operovan\u00e9 a\u017e po narozen\u00ed. Riziko nutnosti zaveden\u00ed ventrikul\u00e1rn\u00edho shuntu se sn\u00ed\u017e\u00ed nebo odd\u00e1l\u00ed. V \u010cesk\u00e9 republice jsme ov\u0161em tuto mo\u017enost na internetu nedok\u00e1zali dohledat. Zd\u00e1lo se, \u017ee v na\u0161ich kon\u010din\u00e1ch st\u00e1le z\u016fst\u00e1vaj\u00ed jen dv\u011b mo\u017enosti: interrupce nebo operace a\u017e po narozen\u00ed.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">V nouzi pozn\u00e1\u0161 p\u0159\u00edtele<\/h3>\n\n\n\n<p>B\u011bhem n\u00e1sleduj\u00edc\u00edch dn\u00ed pln\u011b rozvinula pomoc a podpora rodiny a p\u0159\u00e1tel. M\u00e1 mil\u00e1 kamar\u00e1dka, l\u00e9ka\u0159ka \u017eij\u00edc\u00ed v N\u011bmecku, zjistila, \u017ee operaci prov\u00e1d\u00ed v n\u011bmeck\u00e9m m\u011bst\u011b Mannheimu. I p\u0159esto, \u017ee sama sotva p\u0159ed p\u00e1r dny porodila a ani j\u00ed neskon\u010dilo \u0161estined\u011bl\u00ed, p\u0159elo\u017eila mou l\u00e9ka\u0159skou zpr\u00e1vu a spolu s ultrazvukov\u00fdmi sn\u00edmky zaslala k posouzen\u00ed m\u016fj p\u0159\u00edpad prim\u00e1\u0159i mannheimsk\u00e9 kliniky panu profesoru Kohlovi.<\/p>\n\n\n\n<p>M\u00e1 nete\u0159 mezit\u00edm zjistila, \u017ee slovensk\u00e9 pacientky b\u00fdvaj\u00ed vys\u00edl\u00e1ny na operaci do \u0161v\u00fdcarsk\u00e9ho Curychu. Ob\u011b kliniky jsme kontaktovali a ob\u011b vyj\u00e1d\u0159ily ochotu se na\u0161eho p\u0159\u00edpadu ujmout. Pod podm\u00ednkou, \u017ee n\u00e1s za\u0161t\u00edt\u00ed n\u011bjak\u00e1 \u010desk\u00e1 nemocnice svou podporou.<\/p>\n\n\n\n<p>T\u0159et\u00ed p\u0159\u00edtelkyn\u011b, velk\u00e1 milovnice Podol\u00ed, kontaktovala tedy \u00dastav pro p\u00e9\u010di o matku a d\u00edt\u011b, \u017ee o tuto operaci m\u00e1me z\u00e1jem a zda by byli ochotni prov\u00e9st p\u0159edopera\u010dn\u00ed vy\u0161et\u0159en\u00ed a p\u0159\u00edpadn\u011b se o n\u00e1s po operaci postarat. Napsala e-mail o p\u016flnoci panu profesoru Stra\u0148\u00e1kovi na neonatologii. Odpov\u011bd\u011bl do deseti minut, \u017ee u\u017e se o jednu takovou pacientku i d\u011b\u0165\u00e1tko operovan\u00e9 v d\u011bloze starali a \u017ee se se mnou setk\u00e1 na domluven\u00e9 sch\u016fzce.<\/p>\n\n\n\n<p class=\"has-base-2-background-color has-background\" style=\"border-radius:25px\"><em>\u010clov\u011bk mnohdy zjist\u00ed, kolik m\u00e1 ve skute\u010dnosti p\u0159\u00e1tel, a\u017e kdy\u017e mu te\u010de do bot. A my jsme byli p\u0159\u00e1teli po\u017eehn\u00e1ni.<\/em><\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Sch\u016fzka v \u00daPMD Podol\u00ed<\/h3>\n\n\n\n<p>Co m\u011blo b\u00fdt podle \u017e\u00e1danky oby\u010dejn\u00e9 <em>&#8220;ultrazvukov\u00e9 vy\u0161et\u0159en\u00ed a p\u0159\u00edpadn\u00e1 intervence&#8221; <\/em>byla nakonec sch\u016fzka pln\u00e1 nad\u011bje se dv\u011bma profesory a pan\u00ed doktorkou: p. profesorem Stra\u0148\u00e1kem, vedouc\u00edm neonatologie, p. profesorem Kroftou, vedouc\u00edm fet\u00e1ln\u00ed medic\u00edny a pan\u00ed doktorkou Hanul\u00edkovou, Ph.D.<\/p>\n\n\n\n<p>Nam\u00edsto obvykl\u00e9ho ultrazvukov\u00e9ho vy\u0161et\u0159en\u00ed pln\u00e9ho zlov\u011bstn\u00e9ho ml\u010den\u00ed a smutn\u00fdch pohled\u016f, bylo toto vy\u0161et\u0159en\u00ed doprov\u00e1zen\u00e9 vysv\u011btlen\u00edm v\u0161eho, co vid\u00ed, a pro\u010d si mysl\u00ed, \u017ee jsem pro operaci opravdu vhodnou adeptkou. <\/p>\n\n\n\n<p>\u00dastav pro p\u00e9\u010di o matku a d\u00edt\u011b dlouhodob\u011b spolupracuje s t\u0159et\u00edm evropsk\u00fdm pracovi\u0161t\u011bm, kter\u00fd tuto operaci nab\u00edz\u00ed: s nemocnic\u00ed v belgick\u00e9m m\u011bst\u011b Leuven neboli v Lovani. P\u0159ed v\u00edce ne\u017e deseti lety vyslali jinou \u010deskou pacientku na tuto operaci, tehdy je\u0161t\u011b jej\u00ed otev\u0159enou variantu. Jej\u00ed d\u011b\u0165\u00e1tko je p\u0159ekr\u00e1sn\u00e9 d\u011bv\u010d\u00e1tko <a href=\"http:\/\/rebekababova.eu\" data-type=\"link\" data-id=\"rebekababova.eu\">Rebe\u010dka B\u00e1bov\u00e1<\/a>. Dnes v Lovani nab\u00edz\u00ed i fetoskopickou variantu operace. L\u00e9ka\u0159i v Podol\u00ed nab\u00eddli svou podporu a pomoc ve v\u0161ech sm\u011brech: od nutn\u00fdch p\u0159edopera\u010dn\u00edch vy\u0161et\u0159en\u00ed, po za\u0159\u00edzen\u00ed operace v Belgii, poopera\u010dn\u00ed p\u00e9\u010di a\u017e do porodu, a n\u00e1slednou p\u00e9\u010di o operovan\u00e9ho novorozence. Nab\u00eddli tak\u00e9 pomocnou ruku b\u011bhem procesu \u017e\u00e1dosti o proplacen\u00ed operace u poji\u0161tovny. Je\u0161t\u011b b\u011bhem vy\u0161et\u0159en\u00ed volali panu profesoru Deprestovi z lova\u0148sk\u00e9 nemocnice, zda by se mne ujal.<\/p>\n\n\n\n<p>V tuto chv\u00edli n\u00e1m spadl obrovsk\u00fd k\u00e1men ze srdce. I kdy\u017e zp\u011btn\u011b vn\u00edm\u00e1m mnoho pomoci a vd\u011b\u010dnosti na na\u0161\u00ed cest\u011b, situace byla st\u00e1le velmi stresuj\u00edc\u00ed. Zji\u0161\u0165ov\u00e1n\u00ed v\u0161ech informac\u00ed, nejistota, zda lze dos\u00e1hnout operace i p\u0159es \u010desk\u00e9 ob\u010danstv\u00ed, velk\u00e1 nezn\u00e1m\u00e1, zda operaci propl\u00e1c\u00ed poji\u0161\u0165ovna a obavy z jazykov\u00e9ho bloku&#8230; to v\u0161e odpadlo, kdy\u017e n\u00e1m n\u011bkdo sl\u00edbil, \u017ee se o n\u00e1s postar\u00e1 a \u017ee n\u00e1s situac\u00ed provede. <\/p>\n\n\n\n<blockquote class=\"wp-block-quote has-medium-font-size is-layout-flow wp-block-quote-is-layout-flow\">\n<p>Ze srdce d\u011bkuji l\u00e9ka\u0159sk\u00e9mu t\u00fdmu v \u00daPMD Podol\u00ed, \u017ee n\u00e1m tuto cestu umo\u017enil.<\/p>\n<\/blockquote>\n\n\n\n<h3 class=\"wp-block-heading\">P\u0159\u00edpravy na operaci<\/h3>\n\n\n\n<p>N\u00e1sledovala p\u0159edopera\u010dn\u00ed vy\u0161et\u0159en\u00ed: briskn\u011b objednan\u00e1 magnetick\u00e1 rezonance, amniocent\u00e9za pro genetick\u00fd profil, vy\u0161et\u0159en\u00ed krve. Vy\u0159izov\u00e1n\u00ed evropsk\u00e9ho formul\u00e1\u0159e S2 pro poji\u0161\u0165ovnu, velmi p\u0159\u00edzniv\u00e9 a podporuj\u00edc\u00ed hovory s revizn\u00edm l\u00e9ka\u0159em na\u0161\u00ed poji\u0161\u0165ovny. Radostn\u00e9 schv\u00e1len\u00ed operace. Zd\u00e1nliv\u011b nekone\u010dn\u00e9 \u010dek\u00e1n\u00ed na v\u00fdsledky genetick\u00e9ho vy\u0161et\u0159en\u00ed. Za\u0159izov\u00e1n\u00ed pot\u0159ebn\u00fdch n\u00e1le\u017eitost\u00ed pro mou dlouhodobou nep\u0159\u00edtomnost doma. A mazlen\u00ed s d\u011btmi. <strong>D\u016fle\u017eit\u00e9 v\u011bci.<\/strong> Pak n\u00e1m do\u0161ly p\u0159\u00edzniv\u00e9 v\u00fdsledky genetick\u00e9ho vy\u0161et\u0159en\u00ed a mohli jsme vyrazit do Belgie na operaci.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Operace v Lovani<\/h3>\n\n\n\n<p>Do Lovan\u011b jsme se dopravili autem. B\u011bhem jednoho dne jsem je\u0161t\u011b jednou podstoupila pot\u0159ebn\u00e1 p\u0159edopera\u010dn\u00ed vy\u0161et\u0159en\u00ed magnetick\u00e9 rezonance, ultrazvuku a sch\u016fzku s anesteziologem. Byla jsem uzn\u00e1na za vhodnou kandid\u00e1tku pro operaci, kter\u00e1 prob\u011bhla druh\u00fd den. <\/p>\n\n\n\n<p>Je\u0161t\u011b p\u0159ed p\u0159esunem na s\u00e1l mne mile p\u0159ekvapil l\u00e9ka\u0159sk\u00fd t\u00fdm z Podol\u00ed, kter\u00fd mne p\u0159ilet\u011bl podpo\u0159it svou p\u0159\u00edtomnost\u00ed u samotn\u00e9 operace.<\/p>\n\n\n\n<blockquote class=\"wp-block-quote has-medium-font-size is-layout-flow wp-block-quote-is-layout-flow\">\n<p>L\u00e9ka\u0159sk\u00fd a o\u0161et\u0159uj\u00edc\u00ed t\u00fdm v Lovani m\u011bl tu vynikaj\u00edc\u00ed vlastnost, \u017ee po celou dobu pobytu mne na jak\u00fdkoliv diskomfort upozornil p\u0159edem. M\u011blo-li n\u011bco zastudit, \u0159ekli mi to dop\u0159edu. Pokud n\u011bco drobn\u011b p\u00edchlo, upozornili mne. Nikdy nelhali a nikdy to nebylo hor\u0161\u00ed, ne\u017e \u0159ekli. Nejt\u011b\u017e\u0161\u00ed&nbsp;\u010d\u00e1st v\u011bt\u0161iny z\u00e1krok\u016f byl tedy strach z nezn\u00e1m\u00e9ho. Samotn\u00e9 procedury nebyly nikdy stra\u0161n\u00e9.&nbsp;<\/p>\n<\/blockquote>\n\n\n\n<p class=\"has-medium-font-size\">Na opera\u010dn\u00edm s\u00e1le mi nechali opera\u010dn\u00ed r\u00f3bu. Zakryli mne nah\u0159\u00e1t\u00fdm ru\u010dn\u00edkem pro v\u011bt\u0161\u00ed pohodl\u00ed a pak mi zavedli do zad epidural &#8211; dezinfekce&nbsp;<em>zastudila<\/em>, epidural <em>m\u00edrn\u011b \u0161t\u00edpnul<\/em>, lehce nep\u0159\u00edjemn\u011b <em>projel z\u00e1dy<\/em>. Pak mi \u0159ekli, \u017ee to byla ta posledn\u00ed nekomfortn\u00ed v\u011bc, kterou mi d\u011blali, a uspali mne celkovou anestezi\u00ed. Ostatn\u00ed kanyly mi ji\u017e zavedli ve sp\u00e1nku. Probudila jsem se po p\u011bti hodin\u00e1ch operace a\u017e p\u0159i p\u0159evozu na jednotku intenzivn\u00ed p\u00e9\u010de. V\u0161e dopadlo v\u00fdborn\u011b, d\u011bv\u010d\u00e1tko m\u011blo p\u00e1te\u0159 kr\u00e1sn\u011b za\u0161itou a j\u00e1 se mohla za\u010d\u00edt hojit.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Hospitalizace v belgick\u00e9 Lovani<\/h3>\n\n\n\n<p>Byla jsem velmi vd\u011b\u010dn\u00e1, \u017ee jsem mohla s sebou m\u00edt jako doprovod sv\u00e9ho man\u017eela. Prvn\u00edch p\u00e1r dn\u00ed jsem pot\u0159ebovala pomoci s polohov\u00e1n\u00edm. Ne\u017eli se mi postupn\u011b navr\u00e1tila mobilita, pom\u00e1hal mi vst\u00e1vat, doprov\u00e1zel mne a pom\u00e1hal s drobnou sebeobsluhou. <\/p>\n\n\n\n<figure class=\"wp-block-image\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"683\" src=\"https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/hospitalisatie_33_neonatale_zorg.webp\" alt=\"\" class=\"wp-image-109\" srcset=\"https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/hospitalisatie_33_neonatale_zorg.webp 1024w, https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/hospitalisatie_33_neonatale_zorg-300x200.webp 300w, https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/hospitalisatie_33_neonatale_zorg-768x512.webp 768w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><figcaption class=\"wp-element-caption\">Lova\u0148sk\u00e1 nemocnice p\u0159ipom\u00edn\u00e1 p\u011btihv\u011bzdi\u010dkov\u00fd hotel \u22c6\u22c6\u22c6\u22c6\u22c6  <\/figcaption><\/figure>\n\n\n\n<p>Na lova\u0148skou nemocnici m\u00e1m ty nejkr\u00e1sn\u011bj\u0161\u00ed vzpom\u00ednky. R\u00e1da ji p\u0159irovn\u00e1v\u00e1m k p\u011btihv\u011bzdi\u010dkov\u00e9mu hotelu se speci\u00e1ln\u00ed slu\u017ebou pro pomoc bolav\u00fdm. V\u0161ichni, s nimi\u017e jsem se tam setkala, byli nadm\u00edru laskav\u00ed, vst\u0159\u00edcn\u00ed a s nulovou toleranc\u00ed pro bolest. M\u011bla jsem radost, \u017ee jsem se prakticky nesetkala s jazykovou p\u0159ek\u00e1\u017ekou. Ka\u017ed\u00fd, s k\u00fdm jsme hovo\u0159ili, mluvil anglicky, francouzsky, n\u011bmecky a vl\u00e1msky. Plynn\u011b p\u0159ech\u00e1zeli mezi jednotliv\u00fdmi jazyky a k nedorozum\u011bn\u00edm prakticky nedoch\u00e1zelo.<\/p>\n\n\n\n<p>Milou laskavost jsem dostala i od m\u00edstn\u00ed pastora\u010dn\u00ed slu\u017eby, kter\u00e1 v\u011bnovala mne i m\u00fdm chlapc\u016fm vycpan\u00e1 srd\u00ed\u010dka, k nim\u017e jsme se mohli tulit, kdy\u017e se n\u00e1m zastesklo v dob\u011b odlou\u010den\u00ed. <\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"814\" src=\"https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/little-cuddle-heart-1024x814.jpg\" alt=\"\" class=\"wp-image-111\" srcset=\"https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/little-cuddle-heart-1024x814.jpg 1024w, https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/little-cuddle-heart-300x238.jpg 300w, https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/little-cuddle-heart-768x611.jpg 768w, https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/little-cuddle-heart-1536x1221.jpg 1536w, https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/little-cuddle-heart-2048x1628.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><figcaption class=\"wp-element-caption\">Cuddle hearts: srd\u00ed\u010dka k tulen\u00ed, kter\u00e1 jsem dostala pro sebe a ka\u017ed\u00e9 z m\u00fdch d\u011bt\u00ed v Lovani<\/figcaption><\/figure>\n\n\n\n<p>Po t\u00fddnu hospitalizace mne z\u00e1sobovali l\u00e9ky na cestu a vyslali dom\u016f. Vzhledem k d\u00e9lce trasy jsme si j\u00edzdu rozd\u011blili na dv\u011b poloviny s p\u0159esp\u00e1n\u00edm v N\u011bmecku. Po p\u0159\u00edjezdu do \u010cech jsem pak p\u0159i\u0161la na n\u011bkolikadenn\u00ed hospitalizaci do \u00daPMD Podol\u00ed, kde si mne p\u0159evzali do p\u00e9\u010de.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">A miminko?<\/h3>\n\n\n\n<p>D\u00edky \u0161pi\u010dkov\u011b proveden\u00e9 operaci se vyrovnal podtlak v p\u00e1te\u0159i a na\u0161\u00ed hol\u010di\u010dce vymizela Arnold Chiariho II. malformace: moze\u010dek vystoupal v\u00fd\u0161e, obnovil se pr\u016ftok mozkom\u00ed\u0161n\u00edho moku mezi hlavi\u010dkou a p\u00e1te\u0159\u00ed. Operace stabilizovala n\u00e1lez zavodn\u011bn\u00ed hlavi\u010dky. To bylo k na\u0161\u00ed velk\u00e9 radosti, nebo\u0165 b\u011bhem jednoho m\u011bs\u00edce od prvn\u00edho ustanoven\u00ed diagn\u00f3zy a\u017e do samotn\u00e9 operace se zv\u011bt\u0161il rozestup mozkov\u00fdch komor t\u00e9m\u011b\u0159 o 1 cm na obou stran\u00e1ch. Operace toto zv\u011bt\u0161ov\u00e1n\u00ed zastavila.<\/p>\n\n\n\n<p>D\u00edky operaci proveden\u00e9 v 28. t\u00fddnu t\u011bhotenstv\u00ed se a\u017e do porodu nad\u00e1le nezhor\u0161oval zdravotn\u00ed stav na\u0161eho miminka.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"684\" src=\"https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/hu-chen-tCbTGNwrFNM-unsplash-1024x684.jpg\" alt=\"\" class=\"wp-image-116\" srcset=\"https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/hu-chen-tCbTGNwrFNM-unsplash-1024x684.jpg 1024w, https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/hu-chen-tCbTGNwrFNM-unsplash-300x200.jpg 300w, https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/hu-chen-tCbTGNwrFNM-unsplash-768x513.jpg 768w, https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/hu-chen-tCbTGNwrFNM-unsplash-1536x1025.jpg 1536w, https:\/\/spina-bifida.cz\/wp-content\/uploads\/2025\/03\/hu-chen-tCbTGNwrFNM-unsplash-2048x1367.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><figcaption class=\"wp-element-caption\">Zdroj: <a href=\"https:\/\/unsplash.com\/photos\/person-holding-babys-hand-in-close-up-photography-tCbTGNwrFNM\" target=\"_blank\" rel=\"noreferrer noopener\">unsplash.com\/&#8230;<\/a><\/figcaption><\/figure>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Jmenuji se Ane\u017eka Kaz\u00edkov\u00e1 a ve 22. t\u00fddnu t\u011bhotenstv\u00ed diagnostikovali m\u00e9mu d\u011bv\u010d\u00e1tku v\u00fdvojovou vadu spina bifida aperta: otev\u0159en\u00fd roz\u0161t\u011bp p\u00e1te\u0159e a j\u00edm zp\u016fsobenou nehybnost doln\u00edch kon\u010detin, vbo\u010den\u00e9 \u0161lapky a hromad\u011bn\u00ed mozkom\u00ed\u0161n\u00edho moku v hlavi\u010dce. V diagnostick\u00e9m centru v Brn\u011b ve Veve\u0159\u00ed mi citliv\u011b vysv\u011btlili podstatu diagn\u00f3zy a jak m\u016f\u017ee \u017eivot se spinou bifidou vypadat. Nab\u00eddli [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":19,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[],"class_list":["post-18","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-pribehy"],"_links":{"self":[{"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/posts\/18","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/comments?post=18"}],"version-history":[{"count":28,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/posts\/18\/revisions"}],"predecessor-version":[{"id":376,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/posts\/18\/revisions\/376"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/media\/19"}],"wp:attachment":[{"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/media?parent=18"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/categories?post=18"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/spina-bifida.cz\/index.php\/wp-json\/wp\/v2\/tags?post=18"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}